Welcome to the November update on the Thames Valley & Surrey Care Records Partnership
“One-in-five residents in the TVS area receive care outside of their local area, so sharing health and care information across boundaries makes a lot of sense.The more comprehensive and accurate the information we have in our shared care records, the more useful and used they will become, supporting better health and care outcomes for residents.
I am stating the obvious, but that's why we are putting energy into ensuring we have the ability to share information in the right way for our residents, patients and professionals.Our Ethics and Advisory Panel is supporting us in getting these arrangements right and you can hear more about their discussions below.
If you weren’t able to attend our networking event on 5 November, then do take a look at some of the content from the day. The Q&A and presentations from the event are available on our website along with the new animation for the public on some of the potential benefits of the TVS care records.”
Senior Responsible Officer for the Programme
'Accelerate, Enable, Disrupt!'
100 delegates come together for the 2019 Thames Valley and Surrey (TVS) Care Records Partnership event
Stakeholders from across the geography came together on 5 November for the TVS Care Records Partnership and Digital Health Networks event. Almost 100 delegates joined us in discussions, debate and heard from experts in the fields of health and digital development.
'Accelerate, Enable, Disrupt' was the theme of the event which opened with a keynote speech from Fiona Edwards, Chair for the TVS Care Records Partnership, about system integration and the benefits of enabling population health management, setting the scene for a stimulating and diverse day ahead. She emphasised “To really mobilise the great work of shared records, using data and using technology, you have to put people first.”
Laura Fulcher, Founder of Mission Remission and Patient Lead on the LHCR data standards project and Cristina Serrao, Patient Director at Camden Musculoskeletal Services gave the patient perspective, highlighting how advances in digital health can positively impact the care that they receive.
John Farenden, Senior Programme Lead, Local Health and Care Records Programme at NHSX gave a national perspective of records sharing and use at the heart of health and care transformation and delegates also heard presentations from professionals involved in TVS across Surrey Heartlands, Berkshire West and Frimley Integrated Care System (ICS).
The event also allowed delegates to actively input into the work of the TVS Care Records Partnership through two interactive workshops focusing on the tangible benefits of the TVS care records platform in Maternity & Child Health and Urgent & Emergency Care.
The Ethics and Engagement Advisory Group met on Wednesday 13 November for the first time.
This group has been created to support the work of the TVS Care Records Partnership and is made up of a broad range of members including lay people and staff representing professional groups. It will support the Partnership by:
·Supporting transparency around the purpose of, and processes for data sharing to maintain public trust in the systems of care.
·Supporting and sharing best approaches to involvement and coproduction with patients and the public, clinicians and practitioners.
·Promoting best communication methods, including consideration of the voice and needs of seldom-heard communities.
·Advising on approaches to secondary use of data such as access to data – who, what and when.
During the first meeting, the group discussed and considered responses to two Information Governance papers. This included the Lead Controller model that is required when sharing data via shared record platforms across any geography; and the Data Subject Rights Policy and Processes, including the process for identifying, validating and providing a response to Subject Access Requests (SAR) by individuals. It also considered local Fair Processing Notices on the TVS Partnership website.
Meetings will take place up to three times a year, providing feedback and recommendations to the TVS Programme Board and supporting development of the TVS care records platform as it is integrated across local areas.
Appointment of Health and Care Professionals Advisors
Delivery of the TVS Partnership’s vision will require the support and engagement of its professional members. To enable this goal, it is proposed to appoint a core group of advisers who can provide insight and leadership across different health and care professions and geographical regions.
The intention is to appoint six to eight professionals, aiming to ensure representation from across the TVS area and across professional domains including: primary care, hospital care, social care, allied health professionals, pharmacists, midwives, nurses, doctors and trainees.
Appointment is for a one year term (Jan-Dec 2020), with possibility of extension for a further year. We anticipate the baseline commitment to be 0.5 day per month, with possibility of further time for additional activities as necessary. Time and travel expenses will be reimbursed accordingly.
We have just released a new animation for patients, the public and other interested individuals that provides an easy to understand introduction to the benefits of the TVS care records.
The film, which features a clinical scenario and was developed with clinical input, was also played to delegates at the event on 5 November to reinforce how innovations in digital health can transform patient care. This is currently available to view on the TVS YouTube site at https://youtu.be/0CpvMUh6w74